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I’ve finalized the modification to the back of my trike (for now). On the right side, I have mounted a PVC tube to hold my cane and my bike locks. On the left, I have added my camelback to the … Continue reading
Ethan is not complaining of any headaches, or any pain at all, and has become almost normal in his mobility (though weak). Given that, we do find it a bit concerning that the site of the shunt tie-off seems to … Continue reading
One pic is Ethan on the 31st in his Dale Earnhardt Jr. costume. Because he had to spend most of his time laying flat in the wagon, I put the number 88 on the side. It cheered him up for … Continue reading
pics from 29 october 2011.
Ethan’s last surgery at the point of the leak was 9 days ago. We were discharged from the hospital last Thursday, and stayed one night at RMHC. We got home late Friday night. It is now Sunday morning, and Ethan … Continue reading
We are noticing that the suture line on his back is weeping interstitial fluid; I think this is a pressure sore. He has had non-stop pressure here for the last 3.5 weeks.